Poor baby girl just can’t get right.
If you are interested~ tonight on the WE channel (7p CST), Texas Multi Mamas will be focusing on Savannah and the day they spent with us at the hospital during her most recent kidney surgery (Feb. 2011). They spent the entire day with us from the time we left our house, to Savannah in her postop room in the hospital.
I am so nervous/anxious about watching this episode~especially because Sav is having more kidney issues and will more than likely need 2 more surgeries very soon. (HEART BREAKING!)
For those of you who have been following our sweet little darling over her short 4 years of life, here is a recap of her surgical history:
(Click on the dated links below for the original blog post)
- R kidney had a UPJ obstruction (almost complete blockage), she had surgical intervention: June 26th, 2009 (almost 2 yrs old)
- A couple of months later, Sav had surgery to remove the ureteral stent that they placed during her 1st surgery on her R kidney: August 17th, 2009 (2 yrs old)
- 3 months later- throw in an eye surgery: November 24th, 2009 (2 yrs old)
- Two weeks after that, her L kidney had Grade V vesicoureteral reflux (urine backs up from her bladder into her kidney), she had surgical intervention (A Ureteral Reimplantation) : December 2nd, 2009 (2 yrs old)
~ Entire day of more kidney testing December 27, 2010 (3 yrs old)
~ Ureteral Reimplantation Surgery on her R side February 16, 2011. (3 yrs old) ~~~The surgery that will be on TV tonight
I will be bawling as I relive this day in the episode...knowing that we will have to do this again very soon.
~ More kidney testing December 22, 2012. (4 yrs old- a few weeks ago)
We have a follow up appointment with our pediatric urologist this Thursday, January 5th~ to go over her latest test results and determine how we proceed. We believe Sav is looking at 2 more surgeries…ugh! It just breaks my heart for her.
Savannah has been through so much in her short life. These tests and surgeries get more and more difficult, the older she is. Last weeks testing was BRUTAL. She understands and KNOWS what is about to happen and she just freaks out. Apparently she lives with an extraordinary amount of pain every day that we don’t even know about…and that kills me.
Please continue to pray for my baby girl and send out those positive vibes, we truly appreciate it.
58 comments:
This breaks my heart. I've been praying since before she was born - I will keep at it.
When I watch tonight's episode, I will be crying right along with you. The hardest thing in the world is to watch one of our little ones in pain. Mine are teenagers and it's still tough.
Sav is in my prayers.
"Apparently she lives with an extraordinary amount of pain every day that we don’t even know about"
...that breaks my heart. :( Poor thing. I will say prayers for her.
Praying for sweet Sav! :(
Poor baby and poor mama. I think all mamas will shed a tear watching tonight.
Having children go through pain is so heartbreaking! I know with my son, everytime he has a seizure, I hurt for him and wish it was me!But he has no recollection of them.Blessing I'm sure. Just prayed for Savannah.
Poor Sav, I will keep her in my prayers.
And wish I could watch T.M.M. but we don't get that channel. :/ My mom does so hopefully I can catch it on reruns when I'm over there.
She will be in my prayers. My son was born with one kidney and has hydronephrosis and a mega ureter. He also had a ureteral reimplantation. It's so hard on them and on Mama.
www.thesorrellsblog.blogspot.com
So many hugs are coming your way. This just breaks my heart reading about it.
I have been following and felt so bad for little Savi and you and Joe each time, but when you recap it here, it absolutely breaks my heart.
My 17yr old (18 next month) had open heart surgery at 1 week old, and we go to see her Cardiologist each year for tests, but it is nothing like you have gone through.
I will add Savi to my prayers that they are able to heal her and there will be no more surgeries for her.
This crushes me inside to think about what Sav is having to go through...I admire your entire families strength and will continue to say lots of prayers!
Aww..poor Sav! You all will continue to be in my prayers.
Praying for sweet Savi now! I am so sorry she lives with such pain! Breaks my heart!
Poor Sav!!! My heart goes out to her and you. I can't even imagine having to see her go through this so often and know that even in between all of it, she's still in pain. :-(
I can't get TMM here but hope to catch the episodes on line soon!
Wishing good things for Sav. Nothing hurts a momma more than a sick little one. Your show is on right now...you guys all look great! Congrats on the show and it's awesome to meet the girls you've been writing about...how cool!
Watching your show tonight !! Poor Sav, it's painful to watch her but bless her for saying she feels better. I was wondering how you were able to keep this secret for so long???? =]
Are kidney transplants possible for Sav?
Ugh. At almost 4 my daughter had a terrible kidney infection and then repeated UTI's. She had to have the most dreadful testing done. It was quite traumatizing at the time and I am sure just the tip of the iceberg of what you guys have had to go through. I can report at 12 years old now, she doesn't remember a thing. It was awful...I'll be praying for Sav and your Mommy heart...
Sending hugs and prayers your way! Watching TMM for the first time right now. You have the sweetest family!
I will continue to pray for you and your sweet girl!
Suz, will definitely be praying for Sav as well as you and Joe. I watched the episode tonight and you guys showed so much strength and love. Savannah is amazing, strong little girl....and you are a pretty amazing momma too!
Poor sweets :( Praying from Waco!
Poor baby. I am praying that God heals her kidneys and that she will not have to have any surgeries. I know that we serve a God who is still in the healing business.
My heart goes out to you and Savi. I had Kidney Reflux as a child and Ureteral Reimplantation surgery when I was 7. I can tell you that the pain and memories of all the tests do fade with time. I will keep my fingers crossed that the upcoming surgeries will go smoothly and Savannah can go on and not have to deal with these issues again.
Good heavens. Your last sentence about her being in pain is so heartbreaking. To think that her being in pain is "normal," just crushes my heart. Even though it isn't a good situation, how special to have a lot of pictures with her mommy and daddy, though. I'll be praying for y'all.
Add me to the heart breaking list...I can't even imagine. I'm so sorry you all have to go through this.
Will be praying for your beautiful daughter. You and your family were awesome on the new show. Maybe WE can give your family its own show. Love your parenting skills and the cute chemistry between you and your husband. Hang in there Sav, sending you prayers sweetie!
Her face in the eye photo breaks my heart! She is such a little trooper, I can't even imagine how hard it is for you all. Sav inspires me :) xx
Sending a huge amount of love and strength to you all and especially beautiful Sav, she is one very brave little girl.
My sweet Sav...I can't get through watching Sav last night without crying. Especially the part with her and Joe, daddies and their girls! That girl is such a role model.
Love you and you guys were great last night on the show. So proud to call you my good friend.
Definitely saying a prayer for sweet Savannah. Hoping that these upcoming surgeries fix things for good. Good luck tomorrow!
Last nights episode broke my heart & then to read this, it breaks again. My thoughts and prayers are with Sav, you, Joe & your entire family. Stay strong. xoxo
Hi! I have never posted a comment to you before, but I have been reading your blog for the past 3 years and feel like I know your family like it was my own. I set my DVR to record the show last night on WE and just bawled while I watched it...having to watch you go through that with your sweet girl. I just wanted to pass along that I am thinking of her and you and will say a special prayer for her tonight with my own little girls.
I watched the show last night and I just wanted to tell you how inspirational you and Sav are. Both of you are so strong! She is very lucky to have a mommy like you!
after following you guys for so long then seeing the episode last night...i just cried right along... i feel like i know you guys...your kids remind me so much of my own (the boys do :) ) but poor savi..i will keep her in my prayers..i can't imagine what you must go through at every surgery and test...and now as she gets older and really realizes what is happening. To think she has been living in so much pain..i know that breaks your heart. You and Joe are great parents and you are doing everything for your sweet baby girl...so sorry you all are going through this ((hug))
Loved the show! I am a mom of one year old triplet girls and another girl due any day! I can so relate to all of you, well expect Stephanie. She's a little too out-there for me!
Praying for sweet little Savi! She is SUCH a tropper and such a big girl! Will continue to pray and send good vibes for your family and her!
As I sit here watching last night's episode, I am in tears. My heart aches for Sav, you, Joe and the boys. To hear Savannah may have to have more surgeries is just heartbreaking. I have been following your blog since just before the quads were born and I have always kept sweet Savi in my prayers, especially those times when she had testing or surgeries. I am amazed by how strong you are and how gracefully you handle such tough tiimes. Thank you for sharing your experiences so openly. Suz, you are an inspiration. And little Savi is a hero. Here's to hoping 2012 will be the last year of surgery and pain for the Steece Princess!
I have followed your blog since you were pregnant. You are the reason I started blogging (thank you for that because now I have my babies memories saved forever!) I love following your story online and it's awesome to watch your show. I just watched Savs surgery and it broke my heart. She's such a cutie. Your positive attitude about everything is inspiring. Thank you for sharing your story!
I cried through the show watching the two of you during her surgery. You are a wonderful mother and Sav is going to look back one day and want to role herself after you. I am so sorry she is going to have to go through this again but she has a wonderful support system through her family. Your mom and dad are precious. I have read your blog for years and to see you on TV is so special. I feel I have known you forever. Please give each baby a big hug for me.
Praying for you all Suz! Praying for wisdom for you and the Dr's in knowing how to proceed to treat little Sav. Big Hug...Kami
I have been following your blog since the quads were born and love your spirit. I watched the show last night and bawled like a baby. She is so strong and so are you. God Bless!
Sav is such an amazing strong little girl and very lucky to have parents like you. I had issues throughout my childhood and had my ureters reimplanted as a teenager. The tests are so terrible and I pray that all her pain and suffering goes away soon. She is a strong little girl and she is in my thoughts and prayers. Hugs to her and your family.
Your little Savannah is such a special little girl, thinking of you all as she's going this. If God brings you to it, He will bring you through it.
And that sweetheart just is as bubbly and happy as can be despite the pain she has on a daily basis. She is truly a little fighter and whatever the future holds, she will make it through. Prayers for you all!
Truly breaks my heart every time I see sweet Savy have to go through this. I wish I could just magically fix her. Ugh. She (and both of you) will be close in my thoughts and prayers.
Thoughts and prayers are with you and your little angel.
Oh Suz! I've been following your blog for the past 3+ years and rarely comment-just love your precious family so much. It's so fun to watch you on the MM show-you are just like I pictured you to be. You seem like such a sweetheart and so genuine. I had to DVR last night's episode and I've been bawling over sweet Sav being so brave. You are brave too, Mama! Praying for y'all. Jenny
I will be continuing to keep praying. I have often wondered why some kids have to go through so much and why things are so hard sometimes. In watching my own five year old with all of his medical struggles I cried countless times, but God has comforted me and him. But you know what I have seen because of Sam's struggles? He has an uncanny sense of God's presence, and healing/protection, he has the kindness and sensitivity of someon who really knows what it is like to go through pain/suffering, he has an attitude of making the best of a stinky situation. Yes I wish he didn't have to go through so much, but God has used our medical struggles to make him an amazing boy with an unbelievable faith and hope in God. Praying for Sweet Sav and all of you. That God uses this situation for his Glory...XOXOXO
PS: I know it is easy for me to say, because TODAY is not a medical crisis for us, but I struggle to, but always realize God is with us through it all
New to reading your blog. Have been watching the show. I hope Sav's appointment goes well today. I was in tears as you were talking in this weeks episode about how you look up to her. Children are AMAZING and so resilient! Your little girl is a fighter and gets her strength from you!
Hope all goes well today! I enjoy following your story!
M
Thinking about you and your sweet littl girl. I hope all goes well and will be praying for the strength for you and your husband to get through this.
i watched the premiere of the show when i was babysitting and i have to say, you seem like one fantastic mommma! i look forward to seeing more episodes and hope everything goes okay in the next surgery for your sweet girl. i adore her name!
That's just so awful. I hope that things are fixed quickly and for good so that she won't have to go through any more surgeries. I know it's got to be hard on all of you.
I watched this week's episode, and it broke my heart! I was in tears as I watched you all go through it. Suz, you are SUCH a fantastic mom. I have enjoyed reading your blog for the past three years, and I love seeing your class act on TV too!
Suz---I've been reading your blog religiously for a year and watched the episode about Savannah's surgery. . .just broke my heart! You seemed so strong and always tried to cheer her up even when your heart was breaking. I don't have kids yet (my husband and I are currently doing IVF) but I cried in the hospital today when I heard another mom's kid crying while having shots done. So can't imagine it being my own! I'll keep praying for you and your family.
Also wanted to say that I admire your strong faith and the dignity and grace with which you interact with all the other ladies of "Multi Mamas". Amid the cattiness and immaturity of some (not all) of the ladies, you keep your wits about you and show such humility!!
I would love to watch your show. Is it on cable? I get comcast? Prayers for Savannah and her kidney issues.
Oh my goodness. That must be unbearable as parents. I will pray for your sweet little girl.
I watched this episode and couldn't stop crying. She's so little but the strongest little girl.
Oh, and by the way, I think you should have your own show. Of all the multi-mamas, I love your family the best :)
Hello again y'all. Oh your poor little diva she's such a doll. How is she. I'm praying that she won't have any more kidney problems anymore. Hope everyone stays well.
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